A qualitative research project, based on 47 in-depth interviews, examining the reported experiences of adults (aged 18-66) living with sickle cell disease/disorder (SCD) about their work and employment in England. The project was in partnership with two sickle cell non-governmental organizations (Sickle Cell Society and OSCAR Sandwell). The project examined the barriers and enablers to employment and work for people living with the severe inherited chronic illness sickle cell disorder (SCD).

Data collection consisted of in-depth interviews with 47 individuals living with SCD in England. Recruited through existing contacts, and through partner sickle cell NGOs, including: the Sickle Cell Society, OSCAR Sandwell, OSCAR Birmingham, OSCAR Nottingham, OSCAR Leicester, Liverpool Sickle Cell and Thalassaemia Support Group, Croydon Sickle Cell and Thalassaemia Support Group, Manchester Sickle Cell Care, Solace (Hackney) and ASYABI (Leeds).