Impaired self-awareness and denial of disability in a community sample of people with traumatic brain injury

DOI

Purpose: To examine the nature and severity of impaired self-awareness (ISA) and denial of disability (DD) in a community-dwelling traumatic brain injury (TBI) population. Additionally, to investigate reliability, internal consistency, and feasibility of the Clinician’s Rating Scale for evaluating Impaired Self- Awareness and Denial of Disability after brain injury (CRS-ISA-DD). Materials and methods: ISA and DD were studied using the CRS-ISA-DD in a cross-sectional study with 78 TBI patients (3.1 years post-injury). Results: 42% of individuals approached consented to participate in this study. Most participants showed one or more symptoms of ISA and DD, but severity scores were in the lower range (ISA: 13.2 ± 16.2; DD: 9.4 ± 10.7). The CRS-ISA-DD takes <10 min to complete, has excellent inter-rater reliability (ISA: ICC(2,1) ¼ 0.928; DD: ICC(2,1) ¼ 0.835), and acceptable-good internal consistency (ISA: a¼0.819; DD: a¼0.645). ISA severity correlated with neuropsychological test scores (rs ¼ _0.30 to _0.47) and injury severity. DD severity correlated with anxiety (rs ¼ _0.22) but not with avoidance coping or defense mechanisms. Conclusions: Low levels of ISA and DD occurred in this sample of TBI patients. The CRS-ISA-DD is a reliable and feasible instrument. We recommend using it as a diagnostic tool to differentiate between ISA and DD once self-awareness problems have been identified.

Identifier
DOI https://doi.org/10.34894/OZOYUA
Related Identifier https://doi.org/10.1080/09638288.2021.1970247
Metadata Access https://dataverse.nl/oai?verb=GetRecord&metadataPrefix=oai_datacite&identifier=doi:10.34894/OZOYUA
Provenance
Creator Terneusen, Anneke ORCID logo; Winkens, Ieke (ORCID: 0000-0002-5576-808X); Smeets, Sanne; Prigatano, George ORCID logo; Porcerelli, John ORCID logo; Kamoo, Ray; Van Heugten, Caroline ORCID logo; Ponds, Rudolf ORCID logo
Publisher DataverseNL
Contributor Winkens, Ieke; faculty data manager FPN
Publication Year 2021
Rights info:eu-repo/semantics/restrictedAccess
OpenAccess false
Contact Winkens, Ieke (Maastricht University); faculty data manager FPN (Maastricht University)
Representation
Resource Type survey data, medical examination data; Dataset
Format application/x-spss-sav
Size 209593
Version 1.1
Discipline Agriculture, Forestry, Horticulture, Aquaculture; Agriculture, Forestry, Horticulture, Aquaculture and Veterinary Medicine; Life Sciences; Social Sciences; Social and Behavioural Sciences; Soil Sciences