PROFILES registry: Quality of life multiple myeloma May 2009

The PROFILES registry offers scientific data in the area of medical psychology and more specific on quality of life of cancer survivors. The PROFILES registry is open to academics anywhere in the world for scientific purposes, free of charge. The archive can be found on the following website: http://www.profilesregistry.nl

In 2009 a questionnaire has been composed treating the subjects health-related quality of life, use of health care and satisfaction with care in patients who had been diagnosed with multiple myeloma. The questionnaire was submitted to 160 patients who were diagnosed with multiple myeloma between 1999 and 2008. 120 patients completed the questionnaire.

Questionnaires used: - General Questions - Work - Cancer and Care - Comorbidity - EORTC-QLQ-C30 (version 3) - EORTC-disease specific lymfoom (CLL)(in development) - EQ5D - DS14 - B-IPQ - FAS - HADS - IOC1/IOC2/IOC1+items2 - EORTC-INFO25 (used to be EORTC-INFO26) - Internet

Identifier
DOI https://doi.org/10.17026/dans-zpk-j332
PID https://nbn-resolving.org/urn:nbn:nl:ui:13-ajp1-0c
Related Identifier https://www.dataarchive.profilesregistry.nl/study_units/view/18
Metadata Access https://easy.dans.knaw.nl/oai?verb=GetRecord&metadataPrefix=oai_datacite&identifier=oai:easy.dans.knaw.nl:easy-dataset:64909
Provenance
Creator Poll - Franse, L. van de; Oerlemans, S.
Publisher Data Archiving and Networked Services (DANS)
Contributor Jonker-Driessen Foundation; ZonMW (the Netherlands organization for health research and development); NWO (the Netherlands Organization for Scientific Research)
Publication Year 2016
Rights info:eu-repo/semantics/closedAccess; DANS License; https://dans.knaw.nl/en/about/organisation-and-policy/legal-information/DANSLicence.pdf
OpenAccess false
Representation
Language English
Resource Type Dataset
Format SAV; PDF; SPS; SAS
Discipline Agriculture, Forestry, Horticulture, Aquaculture; Agriculture, Forestry, Horticulture, Aquaculture and Veterinary Medicine; Life Sciences; Psychology; Social Sciences; Social and Behavioural Sciences; Soil Sciences
Spatial Coverage the Netherlands; Limburg; Noord-Brabant