“Are you listening?”: Experiences shared online by family caregivers of patients in the palliative phase during the Covid-19-pandemic - Dataset

In this study, we investigated the experiences of family caregivers of patients in the palliative phase during the first wave of the Covid-19-pandemic in the Netherlands (March-June 2020). We analysed social media posts and online newspaper articles to investigate family caregivers' experiences. The dataset published here contains 357 Tweet IDs, 20 anonymised Facebook posts and 17 online newspaper articles. 18 forum posts were also analysed in this study, but those could not be made available due to the terms and services of the forum platforms.

Identifier
DOI https://doi.org/10.17026/LS/BWA9ZH
PID https://nbn-resolving.org/urn:nbn:nl:ui:13-3d854b54-90cd-4184-a194-c22d2b8e3f65
Metadata Access https://easy.dans.knaw.nl/oai?verb=GetRecord&metadataPrefix=oai_datacite&identifier=oai:easy.dans.knaw.nl:easy-dataset:335508
Provenance
Creator Hoffstädt, Hinke E.; Verhoef, Mary-Joanne; Akkermans, Aranka; van der Steen, Jenny T.; Stoppelenburg, Arianne; de Vries, Sita; de Graaf, Everlien; Teunissen, Saskia C.C.M.; Hartog, Iris D.; van der Linden, Yvette M.
Publisher Data Archiving and Networked Services (DANS)
Contributor Leiden University Medical Center
Publication Year 2024
Rights info:eu-repo/semantics/openAccess; License: http://creativecommons.org/publicdomain/zero/1.0; http://creativecommons.org/publicdomain/zero/1.0
OpenAccess true
Representation
Resource Type Dataset
Discipline Life Sciences; Medicine