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The social and ethical implications of genetic screening - Part 1: Spinal mus...
This data file contains the responses of 337 participants who completed the SMA Screening Survey (UK). All participants live with Spinal Muscular Atrophy in some capacity... -
The social and ethical implications of genetic screening - Part 2: Explorator...
This collection consists of fifteen interviews with people associated with Spinal Muscular Atrophy(SMA) to explore their experiences, uses of genetic technologies and their... -
Corpora of patient information sheets and consent forms for UK cancer trials ...
This data collection consists of 27 participant information sheets and 23 consent forms freely available on-line. Materials were collected following a comprehensive search for... -
The Perspectives Study: From Evidence to Guidance on Patient Recruitment to C...
Data collection was conducted across three workstreams. In workstream (WS) 1, 17 ICU clinicians/researchers, and eight patient and public involvement (PPI) contributors with... -
Sustainable Consumption, the Middle Classes and Agri-food Ethics in the Globa...
This research is an international study to evaluate the mobilisation and practice of sustainable consumption in global South contexts through an examination of systems of food...